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MISSION STATEMENT

GRIN2B Foundation is a parent-run organization dedicated to furthering research on the GRIN2B gene and providing support and education to the small, but growing community of individuals and families impacted by a GRIN2B diagnosis.

Our objectives are to:

  • FOSTER communication, offer encouragement and provide resources to families.
  • PARTNER with researchers through fundraising and grants to develop potential treatments and gain a better understanding of a GRIN2B diagnosis.
  • FACILITATE the development of an international patient registry program.
  • RAISE the profile of this extremely rare diagnosis through the creation of a public awareness campaign.

VISION STATEMENT

Our vision is a world where every family impacted with a GRIN2B diagnosis feels empowered and supported.

 

2023-2028 Strategic Plan

GRIN2BFoundation-Brochure-2024

2022 Year In Review

2021 Year In Review

2020 Year In Review

2019 Year In Review

2018-Year-In-Review

 

GRIN2B Foundation Board Members during registration