November 19, 2017 – GRIN2B Virtual Family Meeting with the Simons VIP Study Team
2:00 PM to 4:00 PM Eastern Time!
During the GRIN2B Virtual Family Meeting, the Simon’s VIP Study Team will give a registry update, review what they know from a medical standpoint, give a presentation on behavior, and then open up a forum for discussion between the families, researchers, physicians and clinicians on the line.
Since this meeting will be recorded, they will provide a video release form, which will be circulated with the formal registration information. Please review the document and return it by November 11th.
If you have specific questions that you’d like to be addressed, please include them in the meeting registration form.
Ready to join the meeting? Register here: https://goo.gl/forms/
February 28, 2018 – Rare Disease Day
This year marks the 11th international Rare Disease Day. On and around this day hundreds of patient organizations from countries and regions all over the world will hold awareness-raising activities based on the theme of research.