GRIN2B Foundation is a parent-run organization dedicated to furthering research on the GRIN2B gene and providing support and education to the small, but growing community of individuals and families impacted by a GRIN2B diagnosis.
Our objectives are to:
- FOSTER communication, offer encouragement and provide resources to families via our website and social media pages.
- PARTNER with researchers through fundraising and grants to develop potential treatments and gain a better understanding of a GRIN2B diagnosis.
- BUILD & MAINTAIN an international patient registry program.
- RAISE the profile of this extremely rare diagnosis through the creation of a public awareness campaign.
BOARD OF DIRECTORS
President, Liz Marfia-Ash
Vice President, Donna Dunn
Secretary, Carole Suchocki Quennessen
Treasurer, Phil Ash
Medical Outreach Coordinator, Charlotte Johnson
Board Member, Brittaney Crider