Events | GRIN2B Foundation

Celebrating Rare: The GRIN2B Podcast, Episode 3, Part 2

March 31, 2019 No Comments

What’s Self-Care Got To Do With It?

March 30, 2019 No Comments

Celebrating Rare: The GRIN2B Podcast, Episode 3, Part 1

March 27, 2019 No Comments

Celebrating Rare: The GRIN2B Podcast, Episode 2

October 15, 2018 No Comments

Reflections on my first Global Genes Rare Patient Advocacy Summit

October 9, 2018 No Comments

Three Things You Need to Parent a Child with Special Needs

June 19, 2018 No Comments

March 12-18, 2023 – GRIN2B Awareness Week

We are celebrating GRIN2B Awareness during the week of March 12th-18th, as part of GRI Awareness Month in March.

Keep an eye out on our Facebook page, our Instagram @grin2bfoundation and our Twitter page @grin2bsyndrome all month long as we will be sharing GRIN2B facts and profiles of some of our children! Please like and share our posts to help spread awareness!

September 2022 – 3rd Annual Bee Active for GRIN2B Foundation Walk, Run & Roll

This September, we are uniting around the globe to be active, build awareness and raise funds for the GRIN2B Foundation. Choose your own date and time in September, and a way to be active. Whether it’s walking or bike riding or rollerblading, we want you to be active and have some fun.

Learn more about how to register and purchase event t-shirts here!

July 15-16, 2022 – GRIN2B Family Weekend, Chicago, IL

Registration is now open for the GRIN2B Foundation Family Weekend in the Chicago Suburbs, July 15-16, 2022. After postponing this event the past two years, we are beyond thrilled to finally host this much-needed event. Based on feedback we received after our 2018 Conference, we will focus slightly less on Science and more on providing families with support and resources as well as providing parents and their children ample opportunities to connect and bond.

We are taking our Covid precautions very seriously. Please visit our website to view our Covid guidelines for this weekend. http://grin2b.com/family-weekend-2022/

March 12-18, 2022 – GRIN2B Awareness Week

We are celebrating GRIN2B Awareness during the week of March 12th-18th, as part of GRI Awareness Month in March.

Purchase an Awareness t-shirt, an Awareness yard sign or Awareness accessories (mugs, tote bags and notebooks). Or head on over to our Awareness page for more info/ideas!

September 2021 – 2nd Annual Bee Active for GRIN2B Foundation Walk/Run

Learn more about how to register and purchase event t-shirts here!

July 19-23, 2021 – GRIN2Bee Hive Webinar Week

In place of our cancelled GRIN2B Family Weekend this July, we are instead producing a webinar series to engage, educate and empower our community.

For your convenience, the majority of the webinars will be pre-recorded and made available on our YouTube channel starting July 19th. We will have two live webinars in the evening on 7/20 and 7/22. See our webinar page for more details!

We hope you’ll join our beehive that week!

March 15-21, 2021 – GRIN2B Awareness Week

We are celebrating GRIN2B Awareness during the week of March 15th-21st, as part of GRIN Awareness Month in March (each week focuses on a different GRIN gene).

Purchase an Awareness t-shirt, an Awareness yard sign or Awareness accessories (mugs, tote bags and notebooks). Or head on over to our Awareness page for more info/ideas!

December 1, 2020 – Giving Tuesday

Join us on Tuesday, 12/1 for the Global Day of Giving. Everyone can have an impact on #GivingTuesday!

Follow us on social media during November for ways you can help participate in our Giving campaign. Or check out some ideas to get involved here.

September 2020 – Bee Active for GRIN2B Foundation

More information coming soon on how you can sign up and purchase Team shirts!

Learn more here!

May 5, 2020 – Giving Tuesday Now

#GivingTuesday Now is a global day of giving and unity that will take place on May 5, 2020 as an emergency response to the unprecedented need caused by COVID-19.

We know these are hard times right now for many families in our GRIN2B community, and we are not looking to do a huge fundraising push at this time. Happily, there are many ways to get involved without fundraising. Or, there are always smaller ways to get involved in fundraising if you have the means. No amount is ever too small.

Learn how you can get involved here.

March 16-22, 2020 – GRIN2B Awareness Week

We are celebrating GRIN2B Awareness during the week of March 16th-22nd!

Purchase an Awareness t-shirt or Awareness accessories (mugs, tote bags and notebooks).

December 3, 2019 – Giving Tuesday

Join us on Tuesday, 12/3 for the Global Day of Giving. Everyone can have an impact on #GivingTuesday!

October 7, 2019 – Gather for GRIN2B Cocktail Reception Fundraiser – Evanston, IL

Join us at Found Kitchen & Social House for an evening of cocktails, appetizers, Silent Auction prizes and more to benefit GRIN2B Foundation!

Purchase tickets here!

Information on how to sponsors this event or donate an item/service to our Silent Auction can be found here.

Please contact Nicole Rubin at Nicole.grin2b@gmail.com with any questions.

September 13-14, 2019 – CFERV Conference on GRIN Variants – Atlanta, Georgia, USA

We are excited to announce our collaboration with the Center for

Functional Evaluation of Rare Variants, CFERV on their 2019 Conference for GRIN Variants at the Emory Hotel and Conference Center in Atlanta, GA on 9/13 and 9/14. This Conference will bring together the GRIN1, GRIN2A, GRIN2B, GRIN2C, GRIN2D, GRIN3A and GRIN3B parent communities and will be a wonderful opportunity to hear from Scientists and Clinicians around the world studying and treating GRIN disorders.

For registration and hotel information please go here – http://bit.ly/CFERV-GRINconference

A live stream of the speakers will be available for those who cannot attend in person.

May 10, 2019 – 1st Annual Golf Outing Fundraiser – Boonton, NJ

Join us at Knoll Country Club west in Boonton, NJ for a day of Golf to benefit GRIN2B Foundation!

For more info or if you are interested in volunteer or sponsorship opportunities, please contact Carole Quennessen at carole.quennessen@grin2b.com or Tiffany Fischetti at tiffany.grin2b@gmail.com.

March 2019 – 2nd Annual GRIN2B Awareness Month

March is GRIN2B Awareness Month! Keep an eye out on our Facebook page, our Instagram @grin2bfoundation and our Twitter page @grin2bsyndrome all month long as we will be sharing GRIN2B facts and profiles of some of our children! Please like and share our posts to help spread awareness!

Purchase an Awareness t-shirt or Awareness accessories (mugs, tote bags and notebooks).

Download our GRIN2B Awareness printable and share on social media using the hashtags #GRIN2B #GRIN2BAwareness and #rare

September 29, 2018 – European GRIN2B Symposium – Barcelona, Spain

Organized by the Hospital Joan de Deu and two Moms from our European GRIN2B community, Zoe Costello and Amela Huskic. This conference is for families with a GRIN2B diagnosis, researchers, clinicians, physicians and anyone else with knowledge or a wish to learn more about GRIN2B. In addition to the social aspect of the day, clinicians and researchers will provide a scientific background to the GRIN2B gene and its functions as well as a look at what is current and upcoming in the field of genetics and possible treatments. Please register here. For more info, email the organizers at eugrin2b@outlook.com or check their Facebook Event page.

September 21-22, 2018 – GRIN2B Foundation Family Conference – Atlanta, Georgia, USA

SAVE THE DATE: The GRIN2B Foundation is hosting its first Family Conference on 9/21 – 9/22 in Atlanta! Please head over to our ‘Conference’ page to learn how to register for this event. You can also check our Facebook Event page for more details.

March 2018 – 1st Annual GRIN2B Awareness Month

March is GRIN2B Awareness Month!

The board members at the GRIN2B Foundation have been busy bees in February preparing the launch of our first GRIN2B Awareness month. Keep an eye out on our facebook page and our Twitter page @grin2bsyndrome all month long as we will be sharing GRIN2B facts and profiles of some of our children, affectionately known as our “grin2bees”. Please like and share our posts to help spread awareness.

November 19, 2017 – GRIN2B Virtual Family Meeting with the Simons VIP Study Team
2:00 PM to 4:00 PM Eastern Time!

During the GRIN2B Virtual Family Meeting, the Simons VIP Study Team will give a registry update, review what they know from a medical standpoint, give a presentation on behavior, and then open up a forum for discussion between the families, researchers, physicians and clinicians on the line.

Since this meeting will be recorded, they will provide a video release form, which will be circulated with the formal registration information. Please review the document and return it by November 11th.

If you have specific questions that you’d like to be addressed, please include them in the meeting registration form.

Ready to join the meeting? Register here: https://goo.gl/forms/ERY9iXQeWH0Hqd6X2

News & Events