Today GRIN2B Foundation happily announces our very first Executive Director, Elissa Taylor-Bustillo!* Not only does Elissa bring over 24 years of experience in donor management, nonprofit fundraising and community building, but she is also a passionate advocate in multiple realms like diabetes and rare diseases. As a result, she will work to enhance our foundation’s core principles of:
- awareness
- research
- community
- support
About Elissa Taylor-Bustillo
Elissa’s strong commitment to advocacy distinguishes her professional journey. For instance, she has a proven track record of managing successful donation campaigns for EveryLife Foundation for Rare Diseases and Greater DC Diaper Bank. In addition, her firsthand experience with the challenges of chronic illness and rare diseases only deepens her drive and empathy. All in all, her background and insight singularly prepared her for this position and, therefore, to make a real difference in the lives of individuals affected by GRIN2B-Related Neurodevelopmental Disorder.
The Role of Executive Director:
As GRIN2B’s new Executive Director, Elissa will oversee all aspects of the foundation’s operations, including:
- strategic planning
- fundraising initiatives
- community outreach events
- program development
Accordingly, she will work closely with the board of directors and volunteers to enhance the foundation’s impact and expand its reach.
A New Chapter for GRIN2B:
Please join us in giving GRIN2B’s Executive Director Elissa Taylor-Bustillo a warm and heartfelt welcome to our community! Additionally, if you are attending our GRIN2B Family & Research Weekend in July, you can meet Elissa in person.
“We’re ecstatic to take this next step in hiring our very first employee exactly seven years after founding our beloved GRIN2B Foundation. Without a doubt, Elissa’s unique skillset and her own personal journey with rare disease will steward our organization to incredible heights. Onward and upward!” – Liz Marfia-Ash, GRIN2B President and Founder
Contact:
You can email GRIN2B Foundation’s Executive Director at elissa.taylor-bustillo@grin2b.com.
*We would like to note that one of our GRIN2B families generously provided the salary for this role.