GRIN2B Foundation Patient Assistance Grant Program
Open to all patients worldwide with a GRIN2B diagnosis, the program is open as of March 1, 2024. This program will close on December 1st, 2024 or when the funds are depleted, whichever comes first.
Items that are currently covered under this program include:
- Durable medical goods (such as safety beds, wheelchairs, orthotics, cooling vests, etc.)
- Disposable medical equipment not covered by insurance (such as diapers, wipes, first aid)
- Therapy equipment not covered by insurance
- Therapies not covered by insurance (such as therapeutic horseback riding, aquatic therapy, etc)
- Communication devices and/or communication software (including iPads)
- Travel grants to access specialty medical care
The program does not cover medical or pharmaceutical co-pays, therapy costs, respite assistance or service animals.
Grants are provided for new equipment only and paid directly to the vendor.
Denial letters or documentation from insurance companies are required.
If you are applying for an iPad, please note the PAG program only covers either an iPad (256GB, wifi only) or an iPad mini (256GB, wifi only). If you were granted funding for an iPad previously, there is a 3 year minimum before you may reapply for a new one. We do not provide AppleCare insurance, but you may choose to add it later at your own cost. We highly suggest that you purchase a durable cover or add it to your application to help protect the device.
If the equipment you are interested in is not listed above or you are requesting more than 3 items, please contact us with more details on the requested item and we can review its eligibility.
Our grant application period opens on March 1, and we cannot accept applications prior to the start of the grant cycle. When funds are depleted for the year, the program will be closed until the next application cycle and notification will be placed on our website. Applications will be reviewed and approved on a first-come, first-served basis. An applicant may apply once per grant cycle with a yearly maximum of $1,500 and a life-time award maximum of $5,000.
To successfully apply, you must:
» Please register your family in our GRIN2B Foundation Family Registry if you haven’t already done so.
» Complete our application.
» If applicable, email the following documentation to Brittaney Crider, our Family Outreach Coordinator – brittaney.crider@grin2b.com
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- A letter of denial from the insurance provider stating that the requested equipment and/or service was denied (when possible).
- A recent letter from the child’s physician or health care professional explaining the medical necessity of your request (when possible).
- Any other documentation pertaining to the nature of your request. All information is kept confidential.
Applications that are incomplete or missing requested additional information will not be placed in queue for review until complete. All applicants will receive an email stating approval or denial of their application. Denied applicants wishing to re-apply must provide additional documentation of a change of status in circumstances or that other alternatives have failed. We request up to 45 days to review your application.
By awarding these grants, GRIN2B Foundation is making no recommendation to the appropriateness or safety of any particular piece of equipment or therapy in treating GRIN2B-Related Neurodevelopmental Disorders. GRIN2B Foundation and its Board of Directors are not responsible for the safety and use of awarded equipment or therapies. Applicants are strongly urged to consult with their medical professionals and therapists regarding equipment and therapies that would be most beneficial for their situation. We will not divulge application information without written consent from the applicant or their legal guardian. We do ask that award recipients submit a photo showing the child using their equipment or therapy that we may use for the advertising purposes of this grant program. Children will only be identified by their first name and only with written consent of their guardian.
For questions on this program, please email Brittaney Crider, Family Outreach Coordinator – brittaney.crider@grin2b.com
GRIN2B Foundation Continuity of Care Rare Patient Impact Program
In May 2020, thanks to a $15,000 grant from Global Genes, we were able to provide funding to 17 GRIN2B families experiencing hardship and disruption in their child’s care due to the COVID-19 pandemic. Supporting our GRIN2B community is one of the key pillars of our mission, and we were thrilled to launch this program.
This program is now closed. Thank you again to Global Genes for providing the funding for this program. We are proud to be members of the Global Genes Rare Foundation Alliance.
Global Genes is an international nonprofit organization that connects, empowers and inspires the rare disease community, with the ultimate goal of improving the lives of the more than 400 million rare disease patients around the world and their families.
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