Advocacy Powerhouse

Train. Lead. Amplify.

The Advocacy Powerhouse is a specialized training initiative within the Be Empowered & Engaged Program designed to transform families, caregivers, and individuals affected by GRIN2B into confident, impactful advocates.

Whether you’re new to advocacy or a seasoned voice in the rare disease community, this program will help you:
• Understand the legislative process
• Prepare for key events like Rare Across America and Rare Disease Week on Capitol Hill
• Build compelling personal stories to influence decision-makers
• Navigate meetings with lawmakers and health policy leaders

What’s Included:
• Advocacy-focused webinar training series
• Access to national and in-district advocacy events
• A community of peer advocates working alongside you

Watch all Advocacy Powerhouse Webinar Videos

Upcoming webinars:

• Legislative & Policy 101 – June 25th
• Shaping Your GRIN2B Story: Impactful Storytelling for Advocacy – October 28th
• How to Prepare for a Meeting With Your Elected Officials – Date TBD

Return to the Advocacy Hub