GRIN2B ADVOCACY HUB

Take Action. Make Change. Be Heard.

The GRIN2B Advocacy Hub is your central platform for staying informed and taking meaningful action. Designed specifically for our GRIN2B patient and caregiver community, the Hub keeps you connected to the latest in legislative updates and advocacy opportunities that directly impact our rare disease community.

What You’ll Find in the Advocacy Hub:
• Action Alerts: Sign up to receive timely email alerts when action is needed—whether it’s contacting your legislator, signing a petition, or submitting a public comment.
• Legislative Updates: Stay up to date on federal and state policies affecting rare diseases and neurodevelopmental disorders.
• Advocacy Opportunities: From virtual sign-on letters to in-person meetings with lawmakers, we’ll guide you every step of the way.

Together, we can raise awareness, drive research funding, and remove barriers to care.

Take Action

• Sign up for Action Alerts via our partner, Everylife Foundation for Rare Diseases.
• Learn about policies affecting rare disease patients from the National Organization for Rare Disorders.
• Advance your advocacy with the Advocacy Powerhouse Webinar Series.

Upcoming Advocacy Opportunities

• Rare Across America, August 4-15, 2025: an opportunity to meet with your Members of Congress at their in-district offices and educate them on the issues that are most important to the rare community by sharing your story.