By Guest Blogger, Phil Ash, GRIN2B Foundation Board Member
Hello! This is Phil Ash, teacher, father, Board Member of GRIN2B Foundation, and the host of Celebrating Rare: The GRIN2B Podcast. In this episode, I welcome in a new decade by recapping and putting a bow on 2019. What a year it was for our Foundation! We attended events, raised a lot of money and, perhaps most importantly, we completed our first research grant cycle! This past fall, we awarded $56,457 to Dr. Caitlin Hudac, an Assistant Professor at the University of Alabama. Dr. Hudac joins the podcast to tell us all about her exciting research regarding GRIN2B-Related Neurodevelopmental Disorder! During 2020, Dr. Hudac will be studying 25 GRIN2B patients and their EEGs in order to determine specific biomarkers related to the GRIN2B gene. Not sure what that means? Neither was I! Check out the podcast to hear Caitlin break it all down for us. GRIN2B Foundation is very excited about this work and the opportunities it will provide for furthering research into GRIN2B.
Read more about Dr. Hudac’s study here and learn how you can enroll.
I hope you enjoy this episode and be on the lookout for future episodes this year featuring additional parents, researchers and doctors. As always, if you have comments or suggestions for future topics, or are interested in being a guest on future episodes, please send an email to phil.ash@grin2b.com or send a tweet to @grin2bsyndrome, using the hashtag, #CelebratingRare.
To further protect myself from any unintended mistakes, each episode will have the following written disclaimer when you click on the link:
PODCAST Disclaimer: While I make every effort to broadcast correct information, I am still learning. I make every effort to double check my facts, but realize that medicine is a constantly changing science and art. I am simply sharing my views and personal experiences as a GRIN2B parent. I am not a medical professional. I welcome any comments, suggestions, or correction of errors. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Phillip Ash, GRIN2B Foundation, any guests or contributors to the podcast, or any employees, associates, or affiliates of GRIN2B Foundation be responsible for damages arising from use of the podcast.